I have a friend named Rachael. A kindred sister of sorts. Until recently, I’ve never met her in real life. She’s moved to my hometown after I graduated. When I friend requested her, I honestly thought she was someone else with the last name I remembered. I’m so thankful that I made that mistake. Rachael is a mama to many. She has two sons that share my sons names. She and I are on the opposite sides of adoption, her being a loving birth mother and me being an adoptive mother. We’ve bonded over a lot. The most recent and most tragic, is the illness of her daughter. Her daughter shares many of the issues that Carlee has. However, her daughter is terminal. On August 27th, 2012, Jaeda Celeste was diagnosed with Metachromatic Leukodystrophy or MLD. MLD is degeneration in the white matter of the brain and Central Nervous System (CNS) which has a color on staining that should not be there. It genetic disorder that affects nerves, muscles, organs, and behavior. It slowly gets worse over time. And is SUCKS. Royally. (you can read more about Jaeda on her facebook page https://www.facebook.com/blessings4jaeda)
Jaeda went to a birthday party that included a dance. She decided she wanted to go to prom. Her angels came from everywhere to make this happen for her. She rode to prom in an awesome vintage car. She had her prom date. The cafeteria was set up just beautifully. And she entered in a beautiful pink prom dress. Jaeda may not make it to her real prom, this was her dream and strangers and friends and family made it happen. And it was magical. So magical, in fact, that Tinkerbell herself crowned Jaeda prom queen. In all the sadness that Rachael has to endure to watch her daughter slip away, she got this one night to see her shine and radiate in happiness. We pray and pray for a miracle for Jaeda, we don’t give in the diagnosis or what “they” say. And in the meantime, her family makes sure she has all her dreams come true. They are amazing.